Monday, February 10, 2014


For all who are now familiar with muscular dystrophy, we know that due to a defective gene the muscles degenerate progressively depending on each individual affected. A friend of mine asked these question just the other day; When is the right time to hire a caregiver?

In Kenya very few colleges offer care giving courses and when it comes to hiring one you have to go back to your rural home, talk to some relatives to look for and get one for you. It is never an easy process. I had no problem doing my own things and due to weakening muscles I've been forced to swallow my pride and give in to the fact that my husband cannot assist me in everything even if he wanted to, I have to let him be my companion first.

Every time I change a care giver I have to give a brief description of  the kind of person I am looking for and physical strength is always on top of the list. Here we do not have the disability lifts which aide in standing up that is why physical strength of the care giver is a must. Another thing I always ask is the height of the care giver because I am a tall lady and when it comes to standing up a short person will use a lot of energy to lift me and it is always a struggle.

The only problem with hiring a non professional is that you have to teach them everything about your condition and some don't get it and after a few weeks they resign leaving you with so much stress of how you are going to face the following day. What I normally do now a days before I fully hire a carer, I give them a one week probation and if one passes the test I hire them. I hate being disappointed so I have to take every precaution necessary.

  Hiring a care giver is a personal choice and each and every one of us know exactly when and where the shoe pinches the most. I decided on hiring my first care giver four years ago, I am forever grateful for all the carers who have helped me and shared my journey of LIFE WITH MUSCULAR DYSTROPHY.

Acts 20:35 In everything I did, I showed you that by this kind of hard work we must help the weak, remembering the words the Lord Jesus himself said: 'It is more blessed to give than to receive.' "

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