Limb girdle muscular dystrophy encompasses a group of rare disorders and that makes it a rare disease. Many people are suffering with rare conditions/diseases.
A rare disease is also referred to as an orphan disease, is any disease that affects a small percentage of the population. Most rare diseases are genetic, and thus are present throughout the person's entire life, even if symptoms do not immediately appear.
I have to salute all who made this day happen for the first time in Kenya, the public is becoming more aware of rare diseases especially those that are not visible, you can't see them with your naked eyes.